Walk AS One Board of Directors

JennaEllaColorado-178x300Jennifer Visscher – Chairwoman

 A Reason To Walk – I Challenge Us To Move!

My name is Jenna Visscher. I am an artist, a blogger, and a community advocate for Ankylosing Spondylitis awareness and a health activist for research for a cure. I also develop community projects and speak about chronic illness and chronic pain.

I hope you’ll consider adding your steps to our challenge! If it’s 100 or 100,000 – we welcome your contribution. The steps are logged through our website (see this page), and the results are tallied in the grand finale on May 31st, 2016.

jennifer.visscher@walkasone.org

Team: The Blue Apples – US


 

ricky-twibbonRicky White – Vice Chair

Hi, I’m Ricky. I’ve been a part of Walk Your AS Off since 2012. Having been a part of other teams in the past, I finally made the jump and captained my own team, Making Trax, in 2015. I haven’t looked back since.

In the beginning of 2007, I began to suffer from back pain and Sacroiliac Joint pain. Which progressed over the next 3 years. And in April 2010 I was diagnosed with Ankylosing Spondylitis.

Living by the motto: “Ankylosing Spondylitis like all chronic conditions becomes your life, but this doesn’t mean your life has to become your condition”. I strive to work as a positive advocate for those with this incurable chronic illness.

I’m always welcoming to those newly diagnosed and happy to assist in providing appropriate and accurate information. You can email on ricky.white@walkasone.org. I’m always looking for new members to join my team Making Trax. Check out our team page here!


 

Heatherstewart2Heather Stewart – Secretary

Heather Stewart was a state champion baton twirler and champion dancer. During graduate school, she started experiencing chronic pain & fatigue but even with a family history of AS, she was told people of color could not have AS. After seeing her grandfather’s Rheumatologist she was finally diagnosed.

Heather channels her active mind with floral arrangement, crocheting, scrapbooking, volunteering, singing in a barbershop chorus, reading, spending time with family, playing with her dogs and quilting. Heather Stewart is the author/coach for our Musical Motivation posts. She is a Walk Ambassador & Team Captain of The Rockin’ Weebles! You can reach her at heather.stewart@walkasone.org.

 


 

Michelle Andrews – Treasurer

You can email her on – michelle.andrews@walkasone.org

 


 

Christina Lowe – Board Member

Hello everyone, my name is Christina and I was diagnosed with Ankylosing Spondylitis and SpA in 2014. Shortly after my diagnosis, I hit the internet searching for anything I could find on this disease, and I happened across Walk Your AS Off. I joined a group for the virtual walk and it has been one of the biggest blessings in my life. The community at Walk Your AS Off and the sister page Walk AS One is amazing. I decided I wanted to devote my time helping others who are struggling to overcome the obstacles this disease leaves us with.

I volunteered to help with the campaign to help raise money to make them a non-profit.

Then Jenna, the President of this amazing organization asked me to help Co-Captain her group The Blue Apples. That as well as having my own day to share a post to help unite this community and help to give people inspiration has given me so much more than I could ever repay.

I am a stay at home baseball mom, I am also an advocate for AS, I love to write, I love books, I am also a quilter, a knitter, and I crochet when my hands allow it. I’m always up for an adventure, even though I know I will most likely pay for it for a week.

I believe that we are given this one life, and I was given AS along with mine. I do have to moderate and adapt to certain things, but that doesn’t mean I have to stop living all together. Don’t stay stuck in your pain or anger, it won’t change the situation. Live in the moment.

You can email me on – christina.lowe@walkasone.org

 


 

Cookie-Cheryl Hopper – Board Member

You can email her on – cookie.cheryl.hopper@walkasone.org

 


 

Victoria Greenberg – Board Member

 


 

Adrienne Taren – Medical Advisor

Adrienne Taren has captained the WYASO team “Endurance for AS” since 2014. She earned an MD and a Ph.D. in Neuroscience from the University of Pittsburgh-Carnegie Mellon University Medical Scientist Training Program and is currently a resident physician with a research program focusing on the effects of stress and stress reduction interventions (such as mindfulness training) on brain structure and function. In her spare time, she can be found riding a bike (or five) through the gravel hills of Oklahoma.