[Announcement] Welcome Our Two Newest Board Members

You may remember our recent call for application submissions for new members of our board of directors. We were overwhelmed by your responses and the shortlist of applicants were tough to choose from. But we are very pleased to welcome four people to the Walk AS One family. Please join us in welcoming the two newest members of the board of directors, Christina Lowe, and Victoria Greenberg. We are also excited about welcoming the very first medical advisory board member: Adrienne Taren. And last but not least. Please welcome Angela Boswell, who has joined the volunteer committee.

Here’s a little about each of them:

Christina is a stay-at-home baseball mom, who loves a good book. She also loves to write, knit, crochet and is a keen quilter (when her hands allow it.) She’s an active AS advocate and took on the responsibility as co-captain of the Blue Apples in last years Walk Your AS Off. Since then she decided to devote her time “helping others who are struggling to overcome the obstacles this disease leaves us with.”

Victoria is a paralegal based in New Jersey who is passionate about raising the global awareness of AS. Victoria brings valuable insights to the team as a family member of someone with AS. Her brother, and our hero, Micheal Smith was a passionate AS advocate, and Victoria is helping to carry on his legacy.

Adrienne has captained the WYASO team “Endurance for AS” since 2014. She earned an MD and a Ph.D. in Neuroscience from the University of Pittsburgh-Carnegie Mellon University Medical Scientist Training Program and is currently a resident physician with a research program focusing on the effects of stress and stress reduction interventions (such as mindfulness training) on brain structure and function. In her spare time, she can be found riding a bike (or five) through the gravel hills of Oklahoma.

Angela is a former EMT who battled to help others despite her AS diagnosis. She is passionate about educating medical professionals about AS and it’s related diseases.

As excited as we are to grow our Walk AS One family, with the addition of Christina and Victoria, we are saddened to see Carrie Kellenberger and Adam Wolfe go. They have both given so much towards raising awareness, and we feel extremely honored to have worked with them over the last 2+ years. They are both moving onto pastures new and we wish them all the best in their future endeavors. One thing we are sure of is that they’ll be walking their AS off, no matter what challenges they face. From all of us here at Walk AS One — Thank you.

Have your say and make your voice heard in our community survey

We pride ourselves on being a community focused organization. That means your opinion really does matter!

We would love to get to know you better and make sure we are serving you in the best way possible. So we have created a survey for feedback.

If you could spare a few minutes of your time to complete the survey we would be most grateful. Please also share this with your WYASO teams, too.

You don’t have to have AS to participate in the survey. This is a survey for everyone in our community, and that includes the friends and family of those with AS.

We will also be sending out a small gift as a token of our appreciation to those that choose to receive it.

We can’t wait to hear how we can help you more. Click this link to fill out the survey or use the form below.

If you have any questions about the survey please comment below or send us an email.

Announcement: Please welcome our two new board members.

Walk AS One is excited to announce the addition of two new board members. With immediate effect, Michelle Andrews will be taking on the role of Treasurer, and Cookie Hopper will be our Community Outreach Director.

Michelle Andrews is a Business Systems Analyst for the State of Maine and holds a BA in accounting from the University of Maine. She has been actively involved with the Spondylitis Association of America (SAA) as a Support Group Leader in Maine since 2006. Her role included organizing events and activities, along with attending the SAA leadership conference in Los Angeles in 2007. Michelle is a mother of three loving children. During her time off of work she enjoys tracing her heritage and genealogy and has authored several family history books, as well.

Cookie Hopper is the creator of The Faces of Ankylosing Spondylitis and The Faces of Ankylosing Spondylitis Information Board. Cookie has single-handedly gathered 1754 individual “faces” or people with AS together to share their stories of being diagnosed and living with this disease and won’t stop until she hits the goal of 2700 people! Cookie was diagnosed with Ankylosing Spondylitis in 2002, but didn’t become an active participant in the Ankylosing Spondylitis community until 2011. She participates in Walk Your AS Off under the “We’ve Got Your Back! For Fighting For Ankylosing Spondylitis” team. Cookie is also a business owner of a company in the Houston, Texas area that she and her husband started on a shoestring in 1999. She is loved not only by the AS Community, but by her local surrounding towns for the hands on personal touch she has brought to her customers as well as the charity work she provides locally.

In Cookie’s own words, “The main reason I wanted to be a part of this organization is because of the message it’s trying to share with the community, not only with words but by example. These individuals have decided to take on the challenges of Ankylosing Spondylitis in a straightforward manner and live their lives to the best of their ability. That is what appealed to me the most. It’s not about how many steps you take or goals you make; it’s about learning to accept that your BEST is YOUR best. In a world that demands perfection, it’s wonderful to be part of something that reminds me that my best is perfect enough, no matter how society or others see it. No excuses, no apologies, no guilt, no regrets. Your best is as good as anyone else’s. Period.”

All of us at Walk AS One feel extremely fortunate to welcome our two newest board members. We are confident that they will be extremely valuable members of our all volunteer organization, helping us to make 2017 the best year yet for Walk AS One and Walk your AS Off.

It’s Official!


It is our pleasure to inform you that Walk AS One has received the determination letter granting 501c3 status. This means donations are now  tax deductible (for residents of  the United States). Non-profit status opens up a lot of doors for us. We can now do things we have planned, so that we can serve you, the Ankylosing Spondylitis community. This means more awareness, more of a global community voice, and potentially more research.

This has been a long time coming and we’d like to take this opportunity to thank everyone who has given their time to help us achieve everything we have done so far. We couldn’t have done it without you!

We’d also like to thank everyone who bid on items in our (not so) silent auction. We are very pleased with the support and the kindness shown by everyone who donated and bid on items. If you won an item and haven’t received payment instruction yet, please let us know by emailing info@walkasone.org.

What next?

We are already busy making plans for the 2017 Walk Your AS Off awareness event. If you have any feedback or suggestions of how we can make 2017 the best one yet, we’d love to hear from you. Your feedback is very important to us, so please don’t hesitate in having your say. All correspondence can be sent to info@walkasone.org. Or you can write to us at Walk AS One, P.O. Box 6003, Falmouth, Maine 04105.

We believe in you!

You, yes you right there, are the reason we do all of this. You inspire us to want to do more. But to do more we also need your help. Walk AS One is an all-volunteer organization. No one is paid a single penny or cent for their time. In order to ‘reach for the stars’ and achieve everything we all want to, we need your help. More specifically, we need your time. We would love to have you as a volunteer if you think you can spare any time whatsoever. It can be an hour a week, or an hour month. The amount does not matter; what matters is your drive to help the AS community. If you’d like to volunteer let us know your skills and what you are willing to help us with, as well as the amount of time you can spare. As you’ve probably guessed, to do so all you need to do is email us at info@walkasone.org.

Here’s to our future, together! Happy stepping.